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Younger onset dementia

Younger onset dementia
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Younger onset dementia

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Dementia mainly affects older people. The term younger onset dementia is used to describe any form of dementia that develops in people under the age of 65. Dementia has been diagnosed in people in their 50s, 40s and even in their 30s.

Younger onset dementia is similar to other types of dementia in many ways. The same problems generally occur but it can have a different impact, because it appears when people are more likely to be employed fulltime, be raising a family or be financially responsible for a family.

Younger onset dementia can be difficult to diagnose, mainly because the person affected seems too young.

The symptoms of dementia are similar regardless of age of onset.

Anybody who suspects they have younger onset dementia should see their doctor. An early diagnosis is important because it allows for early planning and early access to support, information and possibly medication.

Many conditions can produce symptoms that are similar to dementia, such as vitamin and hormone deficiencies, depression, medication, infections and brain tumours. Telling the difference between these conditions and dementia may involve:

  • a detailed medical history
  • a thorough physical and neurological examination
  • pathology tests
  • brain imaging
  • a psychiatric assessment
  • a neuropsychological assessment

There are many types of dementia. Each type has its own symptoms and is caused by a specific type of change in the brain. The most common type of younger onset dementia is Alzheimer's disease. The Dementia Australia website has information about the different types of dementia.

What happens after a diagnosis of younger onset dementia?

A diagnosis of younger onset dementia can come as a shock. The person affected, and their family and friends, may all feel angry or sad. They might not believe it. There can be a huge sense of loss. These feelings are normal.

But help and support is available, and it is better to get it earlier than later. Dementia Australia is a good place to start. The organisation can explain what is happening as well as provide emotional support, information, education and counselling.

Dementia Australia also coordinates support groups throughout Australia. Some of these groups are specifically for carers of people with younger onset dementia, such as the specialised Living with Dementia Program for people with younger onset dementia. Support groups can provide comfort and practical assistance for carers, relatives and friends of people with dementia.

Find out more by visiting the Alzheimer’s Australia website or calling the National Dementia Helpline on 1800 100 500.

Last reviewed: March 2018

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Dementia Australia | Early planning and younger onset dementia

People with younger onset dementia and their families often face significant changes to their financial situation. The person with dementia may still be in full employment when diagnosed or when the symptoms of dementia make working too much to manage. The person with younger onset dementia may be responsible for a family, have a mortgage and other financial responsibilities.

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What is younger onset dementia? Dementia is the term used to describe the symptoms of a large group of illnesses which cause a progressive decline in a persons mental functioning. It is a broad term which describes symptoms such as loss of memory, intellect, rationality, social skills and normal emotional reactions. The term younger onset dementia isused to describe any form of dementia diagnosed in people under the age of 65.

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When someone has been diagnosed with dementia it is an upsetting time for the individual and for those close to them. If the person has been diagnosed withyounger onset dementia they may still be in full employment at the time of the diagnosis. They may still be responsible for a family and have a mortgage or other financial responsibilities.

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Dementia Australia | National Younger Onset Dementia Key Worker Program

The National Younger Onset Dementia Keyworker Program: Provides individualised services and support for people living with younger onset dementia, their families and carers. Raises awareness of younger onset dementia through the provision of education to health networks and local community. Builds capacity to meet the needs of younger onset dementia within the disability, aged care, community and residential care sectors through consultation, networking and collaboration with service providers and consumers.

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