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Legal rights of people with younger onset dementia

For some people, there is a stigma associated with dementia. Some people with dementia are discriminated against and find it hard to get insurance and even accommodation.

Some people with dementia find it hard to ask for help, or even tell their family, friends or employer, because they fear being left out or discriminated against. This is even more so for younger people with dementia.

If the person with dementia is employed, then it’s important to know that most employers have a legal responsibility to help them continue working. It may be illegal for an employer to fire someone because of an illness like dementia.

Fortunately, there are laws to protect people with dementia and their carers against discrimination. Find out more by calling the National Dementia Helpline on 1800 100 500 or the Carers Australia helpline on 1800 242 636.

A person with dementia who owns their own business or is a director of the company must still fulfil their legal obligations, such as keeping accurate accounting records and meeting tax obligations. Dementia may affect the person’s ability to fulfill these obligations.

The Australian Human Rights Commission has information about employment, disability and the rights of people with dementia.

Last reviewed: November 2016

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Alzheimer's Australia | Early planning and younger onset dementia

People with younger onset dementia and their families often face significant changes to their financial situation. The person with dementia may still be in full employment when diagnosed or when the symptoms of dementia make working too much to manage. The person with younger onset dementia may be responsible for a family, have a mortgage and other financial responsibilities.

Read more on Alzheimer's Australia website

Alzheimer's Australia | What is younger onset dementia?

What is younger onset dementia? Dementia is the term used to describe the symptoms of a large group of illnesses which cause a progressive decline in a persons mental functioning. It is a broad term which describes symptoms such as loss of memory, intellect, rationality, social skills and normal emotional reactions. The term younger onset dementia is usually used to describe any form of dementia diagnosed in people under the age of 65.

Read more on Alzheimer's Australia website

Alzheimer's Australia | Employment and younger onset dementia

When someone has been diagnosed with dementia it is an upsetting time for the individual and for those close to them. If the person has been diagnosed with a younger onset dementia they may still be in full employment at the time of the diagnosis. They may still be responsible for a family, have a mortgage and other financial responsibilities.

Read more on Alzheimer's Australia website

Alzheimer's Australia | I have younger onset dementia

The pages below provides a range of information, ideas for you to consider and suggest types of support that Alzheimers Australia can offer you. Services and programs Support services The Younger Onset Dementia Key Worker Program

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Alzheimer's Australia | National Younger Onset Dementia Key Worker Program

The National Younger Onset Dementia Keyworker Program: Provides individualised services and support for people living with younger onset dementia, their families and carers. Raises awareness of younger onset dementia through the provision of education to WA health networks and local community. Builds capacity to meet the needs of younger onset dementia within the disability, aged care, community and residential care sectors through consultation, networking and collaboration with service providers and consumers.

Read more on Alzheimer's Australia website

Alzheimer's Australia | National Younger Onset Dementia Key Worker Program

The National Younger Onset Dementia Key Worker Program provides individualised information and support to improve the quality of life for people with younger onset dementia. This program expands on the National Dementia Support Program and is being funded by the Australian Department of Health and Ageing under the Living Longer Living Better aged care reform package.

Read more on Alzheimer's Australia website

Alzheimer's Australia | Services available for people with Younger Onset Dementia

The task of living with or caring for someone with younger onset dementia can be difficult, and at times feel overwhelming. However, there are a number of organisations which provide services to help both the person living with dementia and their carers continue caring for people with dementia at home.

Read more on Alzheimer's Australia website

Alzheimer's Australia | About dementia

Information The information in this section defines dementia, describes the symptoms and causes of dementia and explains the difference between normal memory problems and dementia. What is dementia? What is younger onset dementia?

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Alzheimer's Australia | Dementia-Friendly Communities

A dementia-friendly community is a place where people living with dementia are supported to live a high quality of life with meaning, purpose and value. For people with younger onset dementia, this also means being given the opportunity and support to stay at work or volunteer.

Read more on Alzheimer's Australia website

Dementia: what is it? - myDr.com.au

Dementia affects thinking, behaviour and the ability to perform everyday tasks. Find out the early signs of dementia and the importance of a timely diagnosis.

Read more on myDr website

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