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Legal rights of people with younger onset dementia

For some people, there is a stigma associated with dementia. Some people with dementia are discriminated against and find it hard to get insurance and even accommodation.

Some people with dementia find it hard to ask for help, or even tell their family, friends or employer, because they fear being left out or discriminated against. This is even more so for younger people with dementia.

If the person with dementia is employed, then it’s important to know that most employers have a legal responsibility to help them continue working. It may be illegal for an employer to fire someone because of an illness like dementia.

Fortunately, there are laws to protect people with dementia and their carers against discrimination. Find out more by calling the National Dementia Helpline on 1800 100 500 or the Carers Australia helpline on 1800 242 636.

A person with dementia who owns their own business or is a director of the company must still fulfil their legal obligations, such as keeping accurate accounting records and meeting tax obligations. Dementia may affect the person’s ability to fulfill these obligations.

The Australian Human Rights Commission has information about employment, disability and the rights of people with dementia.

Last reviewed: November 2016

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Dementia Australia | Early planning and younger onset dementia

People with younger onset dementia and their families often face significant changes to their financial situation. The person with dementia may still be in full employment when diagnosed or when the symptoms of dementia make working too much to manage. The person with younger onset dementia may be responsible for a family, have a mortgage and other financial responsibilities.

Read more on Dementia Australia website

Dementia Australia | Younger onset dementia - NSW

A diagnosis of younger onset dementia can be very isolating. You may have received a diagnosis, be someone who is caring for a family member, or you may have a mum or dad with younger onset dementia. You are not alone. Dementia Australia NSW provides a number of support services for people who have are living with a diagnosis of younger onset dementia (diagnosed under the age of 65).

Read more on Dementia Australia website

Dementia Australia | Younger Onset Dementia NDIS Toolkit

This toolkit is for people with younger onset dementia and their carer/s or support person. It provides information, advice and guidance to help you apply for the NDIS and prepare to develop an NDIS plan.

Read more on Dementia Australia website

Dementia Australia | What is younger onset dementia?

What is younger onset dementia? Dementia is the term used to describe the symptoms of a large group of illnesses which cause a progressive decline in a persons mental functioning. It is a broad term which describes symptoms such as loss of memory, intellect, rationality, social skills and normal emotional reactions. The term younger onset dementia isused to describe any form of dementia diagnosed in people under the age of 65.

Read more on Dementia Australia website

Dementia Australia | I have younger onset dementia

Information and ideas for you to consider, and types of support that Dementia Australia can offer you Services and programs Support services The Younger Onset Dementia Key Worker Program

Read more on Dementia Australia website

Dementia Australia | Younger onset dementia and the NDIS

Supporting people with Younger Onset Dementia in the National Disability Insurance Scheme (NDIS) The National Disability Insurance Scheme (NDIS) is currently rolling out in the Northern Territory. You can find if the NDIS is available in your area or learn when it is expected to roll out in your location here: NDIS roll out timeline.

Read more on Dementia Australia website

Dementia Australia | Younger onset dementia and the NDIS

Supporting people with Younger Onset Dementia in the National Disability Insurance Scheme (NDIS) The National Disability Insurance Scheme (NDIS) is yet to roll out in South Australia for those aged 18 to 64 years. Details of when the NDIS is expected to roll out for this age group in South Australia can be found here: South Australia NDIS roll out timeline.

Read more on Dementia Australia website

Dementia Australia | QLD Younger Onset Dementia Key Worker Program

The National Younger Onset Dementia Keyworker Program: Provides individualised services and support for people living with younger onset dementia, their families and carers. Raises awareness of younger onset dementia through the provision of education to QLDhealth networks and local community.

Read more on Dementia Australia website

Dementia Australia | Employment and younger onset dementia

When someone has been diagnosed with dementia it is an upsetting time for the individual and for those close to them. If the person has been diagnosed withyounger onset dementia they may still be in full employment at the time of the diagnosis. They may still be responsible for a family and have a mortgage or other financial responsibilities.

Read more on Dementia Australia website

Dementia Australia | National Younger Onset Dementia Key Worker Program

The National Younger Onset Dementia Keyworker Program: Provides individualised services and support for people living with younger onset dementia, their families and carers. Raises awareness of younger onset dementia through the provision of education to health networks and local community. Builds capacity to meet the needs of younger onset dementia within the disability, aged care, community and residential care sectors through consultation, networking and collaboration with service providers and consumers.

Read more on Dementia Australia website

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