Healthdirect Free Australian health advice you can count on.

Medical problem? Call 1800 022 222. If you need urgent medical help, call triple zero immediately

healthdirect Australia is a free service where you can talk to a nurse or doctor who can help you know what to do.

beginning of content

Heart failure – a personal story (video transcript)

Summary

The patient, a retired 65-year-old nurse, was diagnosed with angina in 1984 and retired from nursing on health grounds in 1986. In 1995-96 she noticed breathlessness and was later diagnosed with heart failure.

Watch the related video interview >

Please note...

This interview has been sourced from healthtalk.org, award-winning research into patient experiences in conjunction with the Health Experience Research Group at Oxford University, UK.

healthdirect doesn't endorse any personal opinions expressed in the video, and we recommend you discuss any questions you have regarding unfamiliar terms or descriptions, as well as how this experience compares to the Australian health care system, with a health professional.

Video transcript

Wonders why it takes so long to get a diagnosis of heart failure after tests.

Well the only thing I would like to say to an expert is why do people have to wait such a long time to get... diagnosis... done quickly? I mean when I went for an angiogram I had to wait over fourteen months which is a long time. I mean and I can't even get one done at [place name], we don't have a centre here yet, we've got to travel to [place name]. And you're away all day but you're not admitted, you're just on, you're in a bed obviously, but that is a really, something to me I think you shouldn't have to wait with heart trouble, it should be done as quickly as possible because that's the stress that brings on these sudden deaths. And I think that's what they should be doing now, concentrating on getting things, getting people seen within weeks not months.

Describes an echocardiogram.

I've had a scan on my heart, that was done at the Memorial. Now that's not stressful at all. I mean obviously you're apprehensive, but he talks to you all the time he's doing it. It was on your chest, right up under your arm, up under your chin and right round and under your ribs and everything, they really go very deep. It's like a little, like a mouse but it's on your chest. You have like a gel on and they're looking at the screen, they have a screen in front of them, then they're taking pictures all the time.

Says her heart failure means she can't pick up or play rough games with her grandchildren.

Well really it hasn't affected my relationships. I mean, I don't, it's affected me when the grandchildren are there, because I can't play with them like I used to, I can't pick them up like I used to. I mean we used to love a good old rough and tumble on the floor, may be a game of football in the garden but I can't do that any more.

She only stays in hotels with lifts and chooses less active holidays than before.

Well no I, if we go on holiday I've got to pick a holiday where there isn't a lot of activity in it, so now it's more or less just laze around by the pool. Or we go a short walk or we'll go on bus trips so that there is, we see everything but we don't have to do the walking.

So in a way you have to plan your holiday?

Oh yes, yes very, we do have to plan our holidays to see, we have to certainly make sure that it's not too active. I mean neither of us are getting any younger and we like to get away - we used to have a caravan but we've had to do away with the caravan because I couldn't help to do, pull it about or put the awning up or anything like that, it was just too much.

When you do, you always read the brochure and you try to find out from somebody else if they've been there, what it is like, if there is a lot of climbing or if there's, because a lot of the hotels don't have lifts, and if there was a lot of stairs I couldn't manage, I couldn't manage to go.

More information

Learn more about heart failure.

Copyright: ©2013 University of Oxford. Used under licence from DIPEx. All rights reserved.

Last reviewed: October 2016

Need more information?

These trusted information partners have more on this topic.

Found 30 results

Personal story: caesarean

This video details a woman's personal story of caesarean and how her plans had to change once she found her baby had a heart defect.

Read more on Pregnancy, Birth & Baby website

Personal story: termination due to illness

This video details a couple's personal story of terminating the pregnancy due to illness and their feeling that the baby would have had no quality of life.

Read more on Pregnancy, Birth & Baby website

Personal story: diagnosed with postnatal depression

This video details a woman's personal story of being diagnosed with postnatal depression after she returned to work and how counselling helped.

Read more on Pregnancy, Birth & Baby website

Personal story: special needs baby

This video details a woman's personal story of having a special needs baby after a brain scan suggested her 9 month old boy had severe brain damage.

Read more on Pregnancy, Birth & Baby website

Personal stories of depression and anxiety in parents with new babies

New parents share their stories of depression and anxiety

Read more on WA Health website

Tanja and Mark's story personal stories of depression and anxiety in parents with new babies

Tanja looked into her baby's eyes and wondered if I was going to feel a surge of love. She knew she loved him but there was something missing. She felt like she was looking at someone elses baby.

Read more on WA Health website

Idiopathic retroperitoneal fibrosis - myDr.com.au

Idiopathic retroperitoneal fibrosis is a rare inflammatory condition that can lead to abdominal pain and kidney failure.

Read more on myDr website

Life After Cancer - CanTeen

Read a real story written by a young person who has cancer. Learn more about help and support with CanTeen.

Read more on CanTeen website

Mum's Fight With Cancer - CanTeen

Read a real story written by a young person about how they coped with one of their parents dying. Learn more about help and support with CanTeen.

Read more on CanTeen website

Letting Go Was Hard - CanTeen

Read a real story written by a young person about how they coped with one of their parents dying. Learn more about help and support with CanTeen.

Read more on CanTeen website

Healthdirect 24hr 7 days a week hotline

24 hour health advice and information you can count on

1800 022 222

Government Accredited with over 140 information partners

We are a government-funded service, providing quality, approved health information

Australian Government, health department logo ACT Government logo New South Wales government, health department logo Northen Territory Government logo Government of South Australia, health department logo Tasmanian government logo Government of Western Australia, health department logo
Feedback