Vision and mission
RVA is dedicated to working with all key stakeholders to drive the best outcomes for Australians living with a rare disease.
RVA provides collaborative leadership for the development and implementation of rare disease policy in Australia.
How Rare Voices Australia can help
RVA provides collaborative leadership for the development and implementation of rare disease policy in Australia. RVA is leading the collaborative implementation of the Australian Government’s National Strategic Action Plan for Rare Diseases (Action Plan). A key deliverable of the Action Plan is the Rare Awareness Rare Education (RARE) Portal, Australia's growing national resource for rare diseases. The RARE Portal houses the RARE Helpline, which provides service navigation support to Australians with rare and complex diseases.
Information lines / help lines
- Call the RARE Helpline (0499 549 629) Mon to Fri, 9am to 5pm AEST
Programs, apps and tools
- RVA Online Education Portal Complements RVA’s Education Program and houses several free resources.
