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Rare Cancers Australia

Rare Cancers Australia (RCA) is a charity whose purpose is to improve the lives and health outcomes of Australians living with a rare or less common cancer.

In Australia a rare cancer is defined as one which has fewer than 6 diagnoses per 100,000 of the population and a Less Common cancer is one which has fewer than 12 diagnoses per 100,000 of the population.

There are literally hundreds of different types of rare and less common (RLC) cancers and when combined they have a devastating impact on the community’s health and well-being. There are also many rare sub-types of common cancers such as Breast or Lung.

Vison and mission

RCA’s purpose is to improve the lives and health outcomes of Australians living with rare and less common (RLC) cancers.

RCA has a number of key areas of focus: Creating a patient community, advocacy, patient support programs, fundraising, treatment & research, along with early diagnosis.

How Rare Cancer Australia can help

RCA patient support program can assist with the specific challenges that come with a rare cancer diagnosis.

Patient outcomes can be greatly improved with access to specialist doctors, relevant support services and awareness of treatment options.

Information / help lines

Programs, apps and tools

Recommended links

Last reviewed: July 2022

Information from this partner

Found 95 results

Rare Cancers Australia - Parathyroid Cancer

Parathyroid cancer is a rare disease in which malignant (cancer) cells form in the tissues of a parathyroid gland.

Read more on Rare Cancers Australia website

Rare Cancers Australia - A Place to Learn

We understand it may be difficult to find information about a rare cancer, especially at a time when life may already seem stressful and confusing enough

Read more on Rare Cancers Australia website

Rare Cancers Australia - Goblet Cell Carcinoid Tumours

Goblet cell carcinomas (GCC) are rare neuroendocrine tumours that develop in the appendix. More specifically, they develop in goblet cells, which are responsible for mucus secretion and production.

Read more on Rare Cancers Australia website

Rare Cancers Australia - Chronic Myeloproliferative Disorders

Myeloproliferative disorders are a group of diseases in which the bone marrow makes too many red blood cells, white blood cells, or platelets.

Read more on Rare Cancers Australia website

Rare Cancers Australia - Kaposi Sarcoma

Kaposi sarcoma is a disease in which malignant tumours (cancer) can form in the skin, mucous membranes, lymph nodes, and other organs.

Read more on Rare Cancers Australia website

Rare Cancers Australia - Fibrolamellar carcinoma

Fibrolamellar carcinoma (FLC) is a rare form of liver cancer which is generally diagnosed in adolescents and young adults (before age 40).

Read more on Rare Cancers Australia website

Rare Cancers Australia - Vulvar Cancer

Cancer of the vulva (the external female genital organs, including the clitoris, vaginal lips, and the opening to the vagina).

Read more on Rare Cancers Australia website

Rare Cancers Australia - Chordoma

Chordoma is a very rare type of bone tumour that forms anywhere along the spine from the base of the skull to the tailbone.

Read more on Rare Cancers Australia website

Rare Cancers Australia - Gastrointestinal Carcinoid Tumour

A gastrointestinal carcinoid tumour is cancer that forms in the lining of the gastrointestinal tract.

Read more on Rare Cancers Australia website

Rare Cancers Australia - Liver Cancer

Adult primary liver cancer is a disease in which malignant (cancer) cells form in the tissues of the liver.

Read more on Rare Cancers Australia website

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