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NOFASD - National Organisation for Fetal Alcohol Spectrum Disorder

The National Organisation for Fetal Alcohol Spectrum Disorders Australia (NOFASD Australia) is an independent not-for-profit charitable organisation and the national peak organisation representing the interests of individuals and families who are living with Fetal Alcohol Spectrum Disorders (FASD).

The Organisation was established in 1999 by Ms Sue Miers AM as a result of her personal experience caring for a child with FASD and her struggle to find information and appropriate support services in Australia.

NOFASD Australia operated on a voluntary basis lobbying for FASD to be recognized as a disability in Australia, to advocate for the rights and interests of people living with FASD , to provide information and support to individuals and families at a grassroots level and deliver education to the service provider community.

NOFASD Australia has a large network of individuals and organisations interested in FASD. NOFASD Australia is resourced to enable the expansion of activities and ensure FASD receives due recognition in both national public policy and in practice at a population-wide level.

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Last reviewed: October 2014

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Reports

Over the last five years several government reports have been published which either reference the issue of FASD or specifically relate to the issue of FASD. It is pleasing to see that FASD is being increasingly recognised by Australian Governments as an issue of serious concern to the Australian community, as both a public health and a human rights issue.

Read more on NOFASD - National Organisation for Fetal Alcohol Spectrum Disorder website

FAQs

Read more on NOFASD - National Organisation for Fetal Alcohol Spectrum Disorder website

Fact Sheets

Here are some useful fact sheets to help you get started with the assessment and diagnosis process and in seeking early intervention. The fact sheets contain a range of questions that your health practitioner may ask you in order to build a case history for your child.

Read more on NOFASD - National Organisation for Fetal Alcohol Spectrum Disorder website

FASD Support groups

Here is a list of local and international organisations that provide a FASD support service as part of the work that they do.

Read more on NOFASD - National Organisation for Fetal Alcohol Spectrum Disorder website

NOFASD Australia Resources

Read more on NOFASD - National Organisation for Fetal Alcohol Spectrum Disorder website

Current FASD projects

Current FASD projects

Read more on NOFASD - National Organisation for Fetal Alcohol Spectrum Disorder website

International Diagnostic Guidelines

In Australia there are currently no nationally recognised clinical guidelines for the screening and diagnosis of FASD. However, the Australian FASD Collaboration has developed a national diagnostic instrument for FASD. It is hoped that this will be tested in 2013-14. As part of this process clinical guidelines will be developed for its use. For more information about diagnosis in Australia go to What is FASD?

Read more on NOFASD - National Organisation for Fetal Alcohol Spectrum Disorder website

National Alcohol Guidelines

The most recent version of the Australian Guidelines to Reduce Health Risks from Drinking Alcohol was released by the National Health and Medical Research Council (NHMRC) in 2009

Read more on NOFASD - National Organisation for Fetal Alcohol Spectrum Disorder website

Useful links

The web links and resources listed here are presented for information and educational purposes only and do not necessarily reflect the opinions of or endorsement by NOFASD Australia.

Read more on NOFASD - National Organisation for Fetal Alcohol Spectrum Disorder website

What is FASD?

Fetal Alcohol Spectrum Disorders (FASD) is a term used for a spectrum of conditions caused by fetal alcohol exposure. Each condition and its diagnosis is based on the presentation of characteristic features which are unique to the individual and may be physical, developmental and/ or neurobehavioural.

Read more on NOFASD - National Organisation for Fetal Alcohol Spectrum Disorder website

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