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National Organisation for Fetal Alcohol Spectrum Disorder (NOFASD)

NOFASD is the national peak body supporting people and families living with Fetal Alcohol Spectrum Disorder (FASD) across Australia. Collectively and actively, they promote awareness, prevention, diagnosis and improved outcomes.

NOFASD supports:

  • families caring for someone with FASD
  • people who may have FASD
  • professionals supporting those with FASD.

Vision and mission

NOFASD’s vision is to prevent alcohol exposed pregnancies and improve the quality of life for people impacted by FASD across the nation.

For 25 years NOFASD has been the national voice for FASD and supported affected individuals and families.

Founded by Sue Miers AO in 1999 as part of her personal journey to find FASD answers, information and resources, NOFASD is the essential bridge linking those with lived experience with researchers and clinicians.

How NOFASD can help

  • NOFASD initiatives expand awareness, support research, facilitate policy changes and provide crucial support services.
  • In collaboration with healthcare professionals, educators and policymakers, NOFASD has created a dedicated website platform for affected individuals and their families and carers to find understanding, training and support.
  • NOFASD provides a free helpline service for impacted families.
  • They have tools and resources to support service providers such as teachers, NDIS service providers and allied health professionals.

Information lines / help lines

Call the free NOFASD helpline on 1800 860 613 to speak to someone confidentially, seven days a week.

Programs and apps and tools

Recommended links

Last reviewed: July 2024

Information from this partner

Found 11 results

NDIS & e-learning - NOFASD Australia

This course is an evidence-based, interactive online learning resource, consisting of 7 individual modules. The modules take around 30 to 40 minutes each and

Read more on National Organisation for Fetal Alcohol Spectrum Disorder (NOFASD) website

NHMRC Guidelines on Drinking Alcohol While Pregnant

Australian Government NHMRC Guidelines strongly advise women who are pregnant or planning a pregnancy should not drink alcohol. Learn More

Read more on National Organisation for Fetal Alcohol Spectrum Disorder (NOFASD) website

Managing Challenging and/or Extreme Behaviour - NOFASD Australia

Most children with FASD have immature social development, disorders with sensory processing, a lack of impulse control and an inability to predict

Read more on National Organisation for Fetal Alcohol Spectrum Disorder (NOFASD) website

What Is FASD? | About Fetal Alcohol Spectrum Disorder | NOFASD Australia

Babies exposed to alcohol in the womb can develop fetal alcohol spectrum disorder. Find out what it is, how it affects the child and what you can do about it.

Read more on National Organisation for Fetal Alcohol Spectrum Disorder (NOFASD) website

Characteristics across the lifespan - NOFASD Australia

This means that FASD is often undetected or mis-diagnosed.  However, as a guide, most children and adults who have FASD will typically experience some or all

Read more on National Organisation for Fetal Alcohol Spectrum Disorder (NOFASD) website

Common behaviours and features of children with FASD of kids with FASD - NOFASD Australia

The maturity and development of children with FASD can be uneven and confusing. Read about the common behaviours and features of kids with FASD

Read more on National Organisation for Fetal Alcohol Spectrum Disorder (NOFASD) website

Caring for Yourself - NOFASD Australia

The first aid ideas have been split into three sections, with each section being a different stage of behaviours from the person living with FASD.

Read more on National Organisation for Fetal Alcohol Spectrum Disorder (NOFASD) website

FASD Diagnosis in Australia - Help for Children & Adults

Assessment & diagnosis of FASD is important as it may provide answers for families and improve access to services that can improve life outcomes.

Read more on National Organisation for Fetal Alcohol Spectrum Disorder (NOFASD) website

Adult Diagnosis - NOFASD Australia

Looking for an assessment/diagnosis of adults who may have FASD.

Read more on National Organisation for Fetal Alcohol Spectrum Disorder (NOFASD) website

Adults with FASD - NOFASD Australia

Thinking you or someone you are caring for might have FASD or Fetal Alcohol Spectrum Disorder Click Here

Read more on National Organisation for Fetal Alcohol Spectrum Disorder (NOFASD) website

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