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Haemophilia Foundation Australia

Haemophilia Foundation Australia (HFA) is the national peak body that represents people with haemophilia, von Willebrand disease and other bleeding disorders.

HFA works with a network of State and Territory Foundations to ensure everyone with bleeding disorders in Australia has access to the world’s best practice treatment and care.

HFA is a National Member Organisation of the World Federation of Hemophilia, and participates in activities to improve access to treatment and care to people with bleeding disorders around the world.

Vision and mission

HFA’s vision is for active, independent and fulfilling lives for people in our bleeding disorders community.

HFA is committed to inspiring excellence in treatment, care and support.

How Haemophilia Foundation Australia can help

HFA supports people with bleeding disorders and their families through representation and advocacy, education, information and promotion of research.

Programs, apps and tools

Recommended links

Last reviewed: May 2022

Information from this partner

Found 37 results

Women with bleeding disorders information resources - Haemophilia Foundation Australia

Information resources on bleeding disorders in females. Including finding out you carry the gene for haemophilia, diagnosis and women's stories. And an overview of bleeding disorders in girls and women, which looks at haemophilia, von Willebrand disorder and other rare bleeding disorders. This explains diagnosis, symptoms, treatment, working with your Haemophilia Treatment Centre and other health professionals.

Read more on Haemophilia Foundation Australia website

Health and wellbeing - Haemophilia Foundation Australia

Resources to help older people with bleeding disorders look after their health and wellbeing and work with their Haemophilia Treatment Centre and other health care providers.

Read more on Haemophilia Foundation Australia website

Pain - Haemophilia Foundation Australia

Resources to help older people with bleeding disorders deal with pain management

Read more on Haemophilia Foundation Australia website

Telling others about hep C - Haemophilia Foundation Australia

These fact sheets look at the issues with telling others about having hepatitis C and a bleeding disorder and give some tips on how to approach disclosure in different situations.

Read more on Haemophilia Foundation Australia website

Combined factor V and factor VIII deficiency - Haemophilia Foundation Australia

Brief introductory information about combined factor V (5) and factor VIII (8) deficiency, with links to more detailed high quality information.

Read more on Haemophilia Foundation Australia website

von Willebrand disease - Haemophilia Foundation Australia

Information about von Willebrand disorder or disease (VWD), how common it is, how it is passed on, inheritance and treatment.

Read more on Haemophilia Foundation Australia website

Telling others - Haemophilia Foundation Australia

Information to help with considering some of the issues about telling others (disclosure). It looks at some of the situations where disclosure might come up - with friends, family, new partners, school, work and health workers. It also talks about when you do and don't have to disclose and how to protect your rights and your privacy. Includes tips and personal stories.

Read more on Haemophilia Foundation Australia website

VWD in females - Haemophilia Foundation Australia

Information about the key issues for living with von Willebrand disease for women and girls. Symptoms in females include heavy and painful periods. This explains how VWD is diagnosed and treated; how things might change over a lifetime, through puberty, childbirth and menopause; and how to manage health care.

Read more on Haemophilia Foundation Australia website

Haemophilia booklets and fact sheets - Haemophilia Foundation Australia

Information resources about haemophilia. This includes a general booklet on haemophilia with diagrams showing genetic inheritance and how bleeding occurs in haemophilia along with information about carrying the gene and tips on living well. It also includes a booklet and factsheet on mild haemophilia.

Read more on Haemophilia Foundation Australia website

Sport and exercise for young women - Haemophilia Foundation Australia

An information resources on sport and exercise for girls and young women with bleeding disorders. Includes benefits, risks, exercising safely, managing menstrual periods, injury and rehabilitation, what to tell your coach and dealing with emergencies.

Read more on Haemophilia Foundation Australia website

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