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Haemophilia Foundation Australia

Haemophilia Foundation Australia (HFA) is the national peak body that represents people with haemophilia, von Willebrand disease and other bleeding disorders.

HFA works with a network of State and Territory Foundations to ensure everyone with bleeding disorders in Australia has access to the world’s best practice treatment and care.

HFA is a National Member Organisation of the World Federation of Hemophilia, and participates in activities to improve access to treatment and care to people with bleeding disorders around the world.

Vision and mission

HFA’s vision is for active, independent and fulfilling lives for people in our bleeding disorders community.

HFA is committed to inspiring excellence in treatment, care and support.

How Haemophilia Foundation Australia can help

HFA supports people with bleeding disorders and their families through representation and advocacy, education, information and promotion of research.

Programs, apps and tools

Recommended links

Last reviewed: November 2024

Information from this partner

Found 26 results

FAQs - COVID-19 Vaccine - Haemophilia Foundation Australia

This fact sheet answers common questions about having a COVID-19 vaccine if you have a bleeding disorder like haemophilia: how to prevent bleeding, safety and having FLUVAX at the same time.

Read more on Haemophilia Foundation Australia website

Youth - Factored In - Haemophilia Foundation Australia

Being rareWhat’s it like to grow up with a very rare bleeding disorder? Some of our community members talk about...

Read more on Haemophilia Foundation Australia website

Haemophilia - Haemophilia Foundation Australia

Introductory information about haemophilia, including who has haemophilia, types, severity and symptoms, diagnosis, inheritance and treatment.

Read more on Haemophilia Foundation Australia website

von Willebrand disease - Haemophilia Foundation Australia

Information about von Willebrand disorder or disease (VWD), how common it is, how it is passed on, including inheritance, symptoms, diagnosis and treatment.

Read more on Haemophilia Foundation Australia website

Disclosure - Haemophilia Foundation Australia

Information to help with considering some of the issues about telling others (disclosure) if you have a bleeding disorder. It looks at some of the situations where you might be required to disclose and where you are not required to tell anyone - at work, for superannuation and insurance and travel. It also talks about how to protect your rights and your privacy. Includes tips and personal stories.

Read more on Haemophilia Foundation Australia website

Other bleeding disorders - Haemophilia Foundation Australia

An introduction to information on other inherited bleeding disorders such as rare clotting factor deficiencies and inherited platelet function disorders

Read more on Haemophilia Foundation Australia website

Women with bleeding disorders - Haemophilia Foundation Australia

Information on bleeding disorders in women and girls, such as haemophilia and von Willebrand disease, and the HFA The Female Factors project. It explains carrying the gene, symptoms, treatment, genetic testing and issues around having children.

Read more on Haemophilia Foundation Australia website

Haemophilia and carrying the gene - Haemophilia Foundation Australia

Information for women and girls on carrying the gene alteration causing haemophilia. This answers questions such as can females have haemophilia; what the symptoms are; how to manage bleeding problems; pregnancy and childbirth; and tips from other women who carry the gene.

Read more on Haemophilia Foundation Australia website

VWD in females - Haemophilia Foundation Australia

Information about the key issues for living with von Willebrand disease for women and girls. Symptoms in females include heavy and painful periods. This explains how VWD is diagnosed and treated; how things might change over a lifetime, through puberty, childbirth and menopause; and how to manage health care.

Read more on Haemophilia Foundation Australia website

ABDR - Haemophilia Foundation Australia

Information about the Australian Bleeding Disorders Registry (ABDR) and its role in the treatment and care of people with bleeding disorders.

Read more on Haemophilia Foundation Australia website

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