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Haemophilia Foundation Australia

Haemophilia Foundation Australia (HFA) is the national peak body that represents people with haemophilia, von Willebrand disease and other bleeding disorders.

HFA works with a network of State and Territory Foundations to ensure everyone with bleeding disorders in Australia has access to the world’s best practice treatment and care.

HFA is a National Member Organisation of the World Federation of Hemophilia, and participates in activities to improve access to treatment and care to people with bleeding disorders around the world.

Vision and mission

HFA’s vision is for active, independent and fulfilling lives for people in our bleeding disorders community.

HFA is committed to inspiring excellence in treatment, care and support.

How Haemophilia Foundation Australia can help

HFA supports people with bleeding disorders and their families through representation and advocacy, education, information and promotion of research.

Programs, apps and tools

Recommended links

Last reviewed: June 2020

Information from this partner

Found 36 results

Newly diagnosed - Haemophilia Foundation Australia

A guide for parents of a newly diagnosed child with haemophilia. It includes information about haemophilia, inheritance, bleeding in haemophilia, bruises, and treatment. It also covers growth and development, parenting a child with haemophilia, siblings and exercise and sport. Information on support, including haemophilia foundations and camps, and contact details of services are also given.

Read more on Haemophilia Foundation Australia website

Sport - Haemophilia Foundation Australia

An education resource for parents, teachers and coaches on sport and exercise in young people with haemophilia. Includes information on rehabilitation after a bleed and participation in school activities.

Read more on Haemophilia Foundation Australia website

Women with bleeding disorders - Haemophilia Foundation Australia

Information on bleeding disorders in women and girls, such as haemophilia and von Willebrand disease, and the HFA The Female Factors project. It explains carrying the gene, symptoms, treatment, genetic testing and issues around having children.

Read more on Haemophilia Foundation Australia website

Gene therapy - Haemophilia Foundation Australia

Information about gene therapy in haemophilia, including types of gene therapy, haemophilia and genes, how gene therapy works, what happens when you have gene therapy and are on a clinical trial and frequently asked questions.

Read more on Haemophilia Foundation Australia website

Bleeding disorders - Haemophilia Foundation Australia

Information booklets and posters about bleeding disorders. Includes symptoms, how haemophilia, VWD and rare clotting deficiencies are inherited, treatment and the number of people who have bleeding disorders in Australia.

Read more on Haemophilia Foundation Australia website

Factor X deficiency - Haemophilia Foundation Australia

A brief introduction to factor X deficiency, what causes it and how common it is. Includes links to more detailed high quality information about factor X deficiency.

Read more on Haemophilia Foundation Australia website

Other bleeding disorders - Haemophilia Foundation Australia

An introduction to information on other inherited bleeding disorders such as rare clotting factor deficiencies and inherited platelet disorders

Read more on Haemophilia Foundation Australia website

ABDR - Haemophilia Foundation Australia

Information about the Australian Bleeding Disorders Registry (ABDR) and its role in the treatment and care of people with bleeding disorders.

Read more on Haemophilia Foundation Australia website

Haemophilia - Haemophilia Foundation Australia

Introductory information about haemophilia, including who has it, types, severity and symptoms, diagnosis, inheritance and treatment.

Read more on Haemophilia Foundation Australia website

Women with bleeding disorders - Haemophilia Foundation Australia

Information resources on bleeding disorders in females. Including finding out you carry the gene for haemophilia, diagnosis and women's stories. And an overview of bleeding disorders in girls and women, which looks at haemophilia, von Willebrand disorder and other rare bleeding disorders. This explains diagnosis, symptoms, treatment, working with your Haemophilia Treatment Centre and other health professionals.

Read more on Haemophilia Foundation Australia website

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