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Haemophilia Foundation Australia

Haemophilia Foundation Australia (HFA) is the national peak body that represents people with haemophilia, von Willebrand disease and other bleeding disorders.

HFA works with a network of State and Territory Foundations to ensure everyone with bleeding disorders in Australia has access to the world’s best practice treatment and care.

HFA is a National Member Organisation of the World Federation of Hemophilia, and participates in activities to improve access to treatment and care to people with bleeding disorders around the world.

Vision and mission

HFA’s vision is for active, independent and fulfilling lives for people in our bleeding disorders community.

HFA is committed to inspiring excellence in treatment, care and support.

How Haemophilia Foundation Australia can help

HFA supports people with bleeding disorders and their families through representation and advocacy, education, information and promotion of research.

Programs, apps and tools

Recommended links

Last reviewed: May 2022

Information from this partner

Found 48 results

Getting Older Info Hub - Haemophilia Foundation Australia

The Getting Older Info Hub is an online resource linking to information about getting older with a bleeding disorder and relevant resources and services. It is updated regularly

Read more on Haemophilia Foundation Australia website

Boys - Factored In

Info Boys Sex and intimacy Talking about sex in the HTC clinic Talking to young people about sex Sex and bleeds in males Sexual positions and pleasure Talking to partners Employment Career options Preparing for work Bleeds at work - causes Who to talk to about bleeds at work Things your employer can't do Your responsibilities Disclosure - Who should I tell at work? Sources & reviewers Girls What is a bleeding disorder? Haemophilia A & haemophilia B Von Willebrand disease Other bleeding disorders Diagnosing a bleeding disorder Treatment plans Periods Relationships What do I tell my other doctor or dentist? Working with your Haemophilia Treatment Centre Sport and exercise for young women Bleeding disorders Haemophilia How common is haemophilia About bleeding and bleeds What does severity mean? How is haemophilia diagnosed Signs & symptoms of haemophilia Treatment options When to treat Sources & reviewers Von Willebrand Disorder (VWD) How common is VWD How serious is VWD Types of VWD Symptoms of VWD Treatment for VWD Sources & reviewers Siblings Sports Sport - Where do I start? Getting ready to play sport Before starting a new sport - Ask yourself! Sources & reviewers Sport and exercise for young women Why exercise? What kind of sport or exercise? Getting started What can I do about heavy periods? Protection, treatment and recovery from injuries Any questions? References and reviewers Transition to adulthood Transitioning from health services Why plan ahead? What are the differences between child services and adult services? Looking after your own medication and treatment Calendars, reminders and apps! Moving out of home From childhood to adulthood Sources & Reviewers Travel Checklist for traveling alone Tips for if you hardly ever have bleeding problems Tips for if you need treatment regularly Interstate travel tips Overseas travel tips Useful travel web sites Sources & reviewers Boys View Related Stories Q & A News And More… We are all different and and that goes for boys and young men with bleeding disorders too! In this space we have pulled together information, Q&A and stories that look at the range of experiences of boys and young men in our community

Read more on Haemophilia Foundation Australia website

Haemophilia guide for parents of a newly diagnosed child - Haemophilia Foundation Australia

A guide for parents of a newly diagnosed child with haemophilia. It includes information about haemophilia, inheritance, bleeding in haemophilia, bruises, and treatment. It also covers growth and development, parenting a child with haemophilia, siblings and exercise and sport. Information on support, including haemophilia foundations and camps, and contact details of services are also given.

Read more on Haemophilia Foundation Australia website

Young women - Haemophilia Foundation Australia

A comprehensive information resource for young women and teenage girls about living with a bleeding disorder or carrying the gene. Includes FAQs and personal stories. It covers haemophilia, von Willebrand disease and other rare bleeding disorders and includes explanations about heavy periods and other bleeding symptoms in females. It explains diagnosis, symptoms, treatment, working with your Haemophilia Treatment Centre and other health professionals.

Read more on Haemophilia Foundation Australia website

Women with bleeding disorders - Haemophilia Foundation Australia

Information on bleeding disorders in women and girls, such as haemophilia and von Willebrand disease, and the HFA The Female Factors project. It explains carrying the gene, symptoms, treatment, genetic testing and issues around having children.

Read more on Haemophilia Foundation Australia website

Gene therapy for haemophilia - Haemophilia Foundation Australia

Information about gene therapy in haemophilia, including types of gene therapy, haemophilia and genes, how gene therapy works, what happens when you have gene therapy and are on a clinical trial and frequently asked questions.

Read more on Haemophilia Foundation Australia website

What is MyABDR - Haemophilia Foundation Australia

Information about MyABDR, the patient tool to record information about their bleeding disorder-related treatments, bleeds and inventory of treatment stock at home.

Read more on Haemophilia Foundation Australia website

Factor V Deficiency - Haemophilia Foundation Australia

Brief introductory information about factor V (5) or FV deficiency, what causes it and how common it is. With links to more detailed high quality information.

Read more on Haemophilia Foundation Australia website

Factor X deficiency - Haemophilia Foundation Australia

A brief introduction to factor X (10) deficiency, what causes it and how common it is. Includes links to more detailed high quality information about factor X deficiency.

Read more on Haemophilia Foundation Australia website

ABDR - Haemophilia Foundation Australia

Information about the Australian Bleeding Disorders Registry (ABDR) and its role in the treatment and care of people with bleeding disorders.

Read more on Haemophilia Foundation Australia website

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