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Down Syndrome Australia

Down Syndrome Australia is made up of eight state and territory associations providing support, information and resources to people with Down syndrome and their families, across the country.

Down Syndrome Australia associations have come together to represent and progress the needs, interests and aspirations of people with Down syndrome and those that support them.

Their purpose is to influence social and policy change, provide a national profile and voice for people living with Down syndrome, and to build resources and knowledge capacity of state and territory Down syndrome associations.

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Last reviewed: June 2016

Information from this partner

Found 17 results

What is Down syndrome? | Down Syndrome Australia

Our bodies are made up of millions of cells. In each cell there are 46 chromosomes. The DNA in our chromosomes determines how we develop. Down syndrome is caused when there is an extra chromosome. People with Down syndrome have 47 chromosomes in their cells instead of 46. They have an extra chromosome 21, which is why Down syndrome is also sometimes known as trisomy 21.

Read more on Down Syndrome Australia website

Health and wellbeing | Down Syndrome Australia

As recently as the 1950s, life expectancy for people with Down syndrome was as low as 15 years of age. In recent times, progress in medical and social sciences has very much improved the health and the quality of life enjoyed by people with Down syndrome. In Australia today, most people with Down syndrome will enjoy a long, happy and healthy life.

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Government support | Down Syndrome Australia

The information below provides details on the parts of the disability service system that are delivered nationally or are nationally consistent - in particular the National Disability Insurance Scheme (NDIS). Historically disability services have beendelivered by state and territory governments and it will continue in this way until the NDIS is fully rolled out. These are somewhat fragmented and difficult to navigate and we advise that you contact your local Down syndrome association for details. This section has been arranged to be consistent with the National Disability Strategy.

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New parents | Down Syndrome Australia

The New Parent Resource is a booklet designed specifically for parents and families with a new baby who has been diagnosed with Down syndrome. This booklet will help you understand what Down syndrome is, and what it means in the real world. It includes stories from families around Australia and it has the latest information on everything from dealing with well-meaning people to finding support in your part of the country.

Read more on Down Syndrome Australia website

Down syndrome | Down Syndrome Australia

Within this area of the website you will find information relating to Down syndrome. We understand that sometimes lots of information can be overwhelming. If you are having difficulties finding the correct information relating to what you are searching for, we encourage you to contact us at info@downsyndrome.org.au.

Read more on Down Syndrome Australia website

Prenatal information | Down Syndrome Australia

Down Syndrome Australia provides prenatal support and information including a prenatal fact sheet that contains easy-to-understand, factual and balanced information for people considering prenatal testing or if a test shows that a baby may have or does have Down syndrome.

Read more on Down Syndrome Australia website

In the workplace: for employers

This two-part guide is designed to set the potential employee with Down syndrome on the right path towards employment, and the employer on the right path to creating an inclusive and meaningful work place for people with Down syndrome.

Read more on Down Syndrome Australia website

Prenatal testing for Down syndrome

You may find this information helpful if you are considering having prenatal testing or if you’ve had a test that shows your baby may have or does have Down syndrome.

Read more on Down Syndrome Australia website

In the workplace: for employees

This guide is designed to set you on the right path towards employment and to help you discover what may be the right work for you.

Read more on Down Syndrome Australia website

Down Syndrome and Dementia: A Guide for Families

Dementia is an umbrella term that includes a range of conditions that cause symptoms associated with a decline in memory or other thinking skills.

Read more on Down Syndrome Australia website

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