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Emerge Australia

Emerge Australia is the national patient organisation providing services, evidence-based education, advocacy and research about myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). More recently, they have also begun supporting people with Long COVID, particularly those who also experience post-exertional malaise.

Vision and mission

Australians with ME/CFS achieve the highest quality of life possible.

Every Australian diagnosed with ME/CFS receives effective medical and other services without stigma or discrimination.

How Emerge Australia can help

  • Patient-centered, consultative services to empower patients and encourage self-care
  • Increasing patient literacy with well-informed, medically sound information, aligned with global consensus
  • Education of GPs and allied health professionals about the diagnosis and treatment of ME/CFS and Long COVID
  • Advocacy for people living with ME/CFS and Long COVID, to raise awareness, recognition and investment into finding a biomarker, treatments and a cure

Information lines / help lines

  • Call 1800 865 321 Mon to Fri, 9am to 5pm AEST

Programs, apps and tools

Recommended links

Last reviewed: September 2023

Information from this partner

Found 30 results

Autonomy, Dignity and Independence – Emerge Australia

Autonomy, Dignity and Independence Your role as a Carer Your role as a carer of a person living with ME/CFS has no doubt changed over time

Read more on Emerge Australia website

Disability Support Pension – Emerge Australia

Disability Support Pension Emerge Australia supports people with ME/CFS to submit their best Disability Support Pension (DSP) application

Read more on Emerge Australia website

Associated Conditions – Emerge Australia

Associated Conditions In addition to ME/CFS, it is common for people living with ME/CFS to have other conditions, including: fibromyalgia orthostatic intolerance (OI) mast cell activation syndrome (MCAS) Ehlers-Danlos syndrome (EDS) What is fibromyalgia? Fibromyalgia is a condition that causes widespread pain and muscle stiffness throughout the body

Read more on Emerge Australia website

Employer guide for an employee with ME/CFS and/or Long COVID – Emerge Australia

Employer guide for an employee with ME/CFS and/or Long COVID When an employee with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and/or Long COVID is employed or returns to work, it is normal for an employer to have some questions about how the employee can fulfil their role in the company, and how they can be supported to achieve the most out of their day

Read more on Emerge Australia website

Contact a Financial Counsellor – Emerge Australia

Contact a Financial Counsellor If you feel overwhelmed by debt, contact a financial counsellor as soon as possible

Read more on Emerge Australia website

Get Involved in Research – Emerge Australia

Get Involved in Research “Your story matters – help shape ME/CFS research and pave the way for a better future for all living with ME/CFS” The ME/CFS Biobank and Registry Did you know that signing up and participating in the You+ME Registry is the single easiest way to become involved in research!   The Registry is a patient-driven project, created by and for the people who use it, that aims to collect detailed demographic and health information from individuals living in Australia

Read more on Emerge Australia website

Health and Wellbeing Survey – Emerge Australia

Health and Wellbeing Survey 2019 for Medical Practitioners Emerge Australia have compiled a summary of findings from our 2019 survey to support medical practitioners who wish to increase their knowledge of the lived experience of people with ME/CFS

Read more on Emerge Australia website

For Researchers – Emerge Australia

For Researchers PARTNER WITH EMERGE AUSTRALIA TO ADVANCE ME/CFS AND LONG COVID RESEARCH Emerge Australia is dedicated to providing support for Australian researchers who are working to uncover the causes, develop effective treatments, and create diagnostic tests for ME/CFS and Long COVID

Read more on Emerge Australia website

How to support your friend who lives with ME/CFS or Long COVID – Emerge Australia

How to support your friend who lives with ME/CFS or Long COVID Emerge Australia has put together this guide to help you understand what someone with ME/CFS may be experiencing, and to provide some tips to help support them to stay connected

Read more on Emerge Australia website

Living with Severe ME/CFS – Emerge Australia

Living with Severe ME/CFS Anil van der Zee lives with severe ME and has given permission for Emerge Australia to share his lived experience

Read more on Emerge Australia website

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