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Thalassaemia and Sickle Cell Australia

Thalassaemia and Sickle Cell Australia (TASCA) is a support and advocacy organisation for Australians living with genetic haemoglobin disorders. A not-for-profit organisation, TASCA is overseen by a voluntary management committee, and funded through donations and support from the Victorian Government.

Vision and mission

  • Support for research working towards elimination of Thalassaemia and Sickle Cell Anaemia
  • Care and support for patients and their families
  • Harm minimisation through education

How TASCA can help

TASCA serves an important role in providing advocacy for patients with thalassaemia, sickle cell disease and other related genetic haemoglobin disorders by:

  • Lobbying for funding to meet medical and other support needs
  • Ensuring patients receive the best hospital care
  • Ensuring individuals living with these conditions have a voice

Information lines / help lines

  • Call (03) 70155637 Mon to Fri, 9am to 5pm AEST

Recommended links

Last reviewed: July 2022

Information from this partner

Found 10 results

Treatment Centres – Thalassaemia and Sickle Cell Australia

Treatment Centres Victoria Monash Medical Centre – Medical Therapy Unit 246 Clayton Road, Clayton VIC 3168 Phone: +61 3 9594 2756 or +61 3 9594 3154 Royal Women’s Hospital – Thalassaemia Clinic Cnr Grattan St & Flemington Rd, Parkville VIC 3052 Phone: +61 3 8345 2180 New South Wales Children’s Hospital at Westmead – Haematology Department Cnr Hawkesbury Road and Hainsworth Street, Westmead NSW 2145 Ph: +61 2 9845 0000 Sydney Children’s Hospital -Department of Haematology High Street, Randwick NSW 2031 Ph: +61 2 9382 1111 The Prince of Wales Hospital – Department of Haematology High Street, Randwick NSW 2031 Ph: +61 2 9382 4982 Royal Prince Alfred Hospital – Department of Haematology  320-346 Barker St, Randwick NSW 2031 Ph: +61 2 9515 7013 Westmead Hospital – Department of Haematology Cnr Hawkesbury Rd & Darcy Rds, Westmead NSW 2145 Ph: +61 2 9845 5555 Liverpool Hospital – Department of Haematology Ground Floor, Cnr Elizabeth & Goulburn Street, Liverpool NSW 2170 Ph: +61 2 9828 3000 Western Australia Royal Perth Hospital Wellington Street, Perth WA 6000 Phone: +61 8 9224 2244 Perth Children’s Hospital Department of Paediatric and Adolescent Oncology and Haematology 15 Hospital Ave, Nedlands, WA  6009 Phone:+61 8 6456 2222 Queensland Mater Adult Hospital- Day Oncology Unit Mater Cancer Care Centre Level 2, Duncombe Building, Raymond Terrace, South Brisbane QLD 4101 Phone: 07 3163 5200 Queensland Children’s Hospital 501 Stanley St, South Brisbane, 4101 Phone: 07 3068 1111 (hospital switchboard) Phone: 07 3068 2389 (Haematology Administrative Officer)  Email: LCCH-Haematology@health

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Carrier Screening – Thalassaemia and Sickle Cell Australia

Carrier Screening and Family Planning What is a carrier? We all get two sets of genes, one from our mother and one from our father

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TASCA 4 Kids – Thalassaemia and Sickle Cell Australia

TASCA 4 Kids is a space for kids living with Thalassaemia and Sickle  Cell Anaemia to meet each other and have fun!   We have lots of fun activities, meet-ups and competitions (with prizes!) planned so remember to check back on this page often!   To get updated on all the fun activities fill out the form below and become a TASCA kid!   Upcoming Activity: TASCA Easter Activity Sheet News and Events! TASCA Christmas Card Design Competition November 11, 2020 No Comments Design a Christmas Card using the template below Submit your design for your chance to win prizes and maybe even have your card printed and Read More » TASCA 4 Kids – Sunday 14/10 October 14, 2020 No Comments Join us on Sunday 3:00pm to 3:30pm: https://us02web

Read more on Thalassaemia and Sickle Cell Australia website

Factsheets – Thalassaemia and Sickle Cell Australia

Patient Factsheets Factsheets were co-developed with Monash Health

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Haemoglobin Disorders – Thalassaemia and Sickle Cell Australia

What are Haemoglobin Disorders? Haemoglobin disorders (or haemoglobinopathies) are inherited blood disorders

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Genetic Services – Thalassaemia and Sickle Cell Australia

Australian Genetics Clinics Victoria General Genetics in Melbourne Victorian Clinical Genetics Service (VCGS) Address: Murdoch Childrens Research Institute, Royal Children’s Hospital, Flemington Rd

Read more on Thalassaemia and Sickle Cell Australia website

Infusion Pump Lending Program – Thalassaemia and Sickle Cell Australia

TASCA Infusion Pump Program Eligible TASCA members and patients with haemoglobin disorders in Australia are able to receive a free loan of an infusion pump for free for up to to 3 months

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Support Resources – Thalassaemia and Sickle Cell Australia

Support Resources Peer Support Thalassaemia and Sickle Cell Anaemia Patient Support Group -Online Support group for Australians with Thalassaemia and Sickle Cell Anaemia

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TASCA Small Grant – Thalassaemia and Sickle Cell Australia

TASCA Small Grant In Honour of Sotirios Katakouzinos & Maria Kastoras Grant Information  The TASCA Small Grants program is intended to improve the quality of life and wellbeing of patients through a small grant to fund equipment or other non-perishables for treatment centres

Read more on Thalassaemia and Sickle Cell Australia website

Webinars and Podcasts – Thalassaemia and Sickle Cell Australia

TASCA's Podcasts Featuring stories and experience from patients, parents and families about living with genetic blood disorders

Read more on Thalassaemia and Sickle Cell Australia website

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