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NeuroEndocrine Cancer Australia

NeuroEndocrine Cancer Australia is the only not for profit medical charity providing support to Australians living with neuroendocrine cancers.

NeuroEndocrine Cancer Australia raise awareness and understanding of neuroendocrine tumours (NETs), both within the medical profession and the wider Australian public.

Vision and mission

Their purpose is to achieve earlier diagnosis and ultimately find a cure.

Their mission is governed by five pillars: patient support, education, research, awareness and advocacy.

These pillars have been created to give neuroendocrine cancer patients, their families and friends, a voice in the community, access to the care and treatment that they deserve, raise awareness and knowledge of NETs within the medical community and general public; and encourage and support Australian research in the area of neuroendocrine cancers.

How NeuroEndocrine Cancer Australia can help

They provide the following patient & HCP services and resources:

Patient services:

  • NET Nurse – email or phone
  • Support Groups
  • Advocacy
  • Facebook Support Groups
  • 1:1 Peer Support (Cancer Connect)
  • Weekly live Video Information sessions
  • Clinical Trials listing
  • NET Library – publication / articles / videos

Patient resources:

  • Fact Sheets
  • Nation NET service listing
  • Information Booklets
  • PLANET App – PROMs
  • Treatment & Wellness Care Plan
  • Webinars/forums
  • Monthly newsletter

HCP services:

  • Professional accredited Learning
  • PLANET Registry
  • Clinical In-services
  • Patient referrals
  • Information booklets
  • Newsletter

Programs, apps and tools

A free app is available when you are recruited into the Registry which enables recording of Quality-of-Life scores, performance status, Bristol Stool Scale and vitals (Height, weight and BMI)

Recommended links

Last reviewed: May 2021

Information from this partner

Found 14 results

Patient Stories Archive - NeuroEndocrine Cancer Australia

David Lockwood I have Neuroendocrine cancer

Read more on NeuroEndocrine Cancer Australia website

Australian NET Specialists - NeuroEndocrine Cancer Australia

Being affected by NETs can be an extremely challenging experience, both for patients, and those supporting them

Read more on NeuroEndocrine Cancer Australia website

Patient resources - NeuroEndocrine Cancer Australia

Click here to download an eBrochure to take to your GP

Read more on NeuroEndocrine Cancer Australia website

RACGP Neuroendocrine Tumour Education Course - NeuroEndocrine Cancer Australia

By the end of this course, participants will be able to: Discuss the pathophysiology and epidemiology of neuroendocrine tumours (NETs) Describe appropriate investigations and diagnostic pathways for patients with suspected NETs Outline pharmacological and non-pharmacological treatment options for NETs and their appropriate clinical application Using a multidisciplinary team, formulate a whole-person approach to the management of patients with NETs This course is also open to registrars, who will receive a certificate on completion

Read more on NeuroEndocrine Cancer Australia website

I Am A HCP - NeuroEndocrine Cancer Australia

To join our Health Professionals Network and receive bi-monthly newsletters and direct invitations to our informative webinars and events, please complete our newsletter sign up

Read more on NeuroEndocrine Cancer Australia website

Pheos and Paras - NeuroEndocrine Cancer Australia

The adrenal glands in humans lie atop the kidneys and receive hormonal and nervous system messages and responds by secreting hormones

Read more on NeuroEndocrine Cancer Australia website

Treatment & Wellness Care Plan - NeuroEndocrine Cancer Australia

NeuroEndocrine Cancer Australia in collaboration with the Australian Cancer Survivorship Centre – A Richard Pratt Legacy (ACSC) have developed a care plan for patients with NETS called a ‘Treatment and wellness plan’

Read more on NeuroEndocrine Cancer Australia website

What are Neuroendocrine Cancers?​ - NeuroEndocrine Cancer Australia

Like all cancers, Neuroendocrine Cancers develop when these neuroendocrine cells undergo changes, causing them to divide uncontrollably and grow into a tumour (an abnormal tissue mass).

Read more on NeuroEndocrine Cancer Australia website

Current Open Clinical Trials - NeuroEndocrine Cancer Australia

COMPETE is led as an international, prospective, randomized, controlled, open-label, multicenter phase III study

Read more on NeuroEndocrine Cancer Australia website

Fact Sheets - NeuroEndocrine Cancer Australia

Should you require fact sheets in another language please click through to the International Neuroendocrine Cancer Alliance (INCA) website fact sheet area for Arabic, Chinese (Mandarin), English, French, German, Hindi, Italian, Japanese, Russian and Spanish versions

Read more on NeuroEndocrine Cancer Australia website

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