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NeuroEndocrine Cancer Australia

NeuroEndocrine Cancer Australia is the only not for profit medical charity providing support to Australians living with neuroendocrine cancers. NeuroEndocrine Cancer Australia raise awareness and understanding of neuroendocrine tumours (NETs), both within the medical profession and the wider Australian public.

Vision and mission

Their purpose is to achieve earlier diagnosis and ultimately find a cure. Their mission is governed by five pillars: patient support, education, research, awareness and advocacy.

These pillars have been created to give neuroendocrine cancer patients, their families and friends, a voice in the community, access to the care and treatment that they deserve, raise awareness and knowledge of NETs within the medical community and general public; and encourage and support Australian research in the area of neuroendocrine cancers.

How NeuroEndocrine Cancer Australia can help

They provide the following patient & HCP services and resources:

Patient services:

  • NET Nurse – email or phone
  • NET Dietitian – online or phone consults
  • NET Counsellor – online or phone consults
  • Support Groups – monthly online via Zoom
  • Support Groups – face-to-face
  • Advocacy
  • Facebook Support Groups
  • 1:1 Peer Support (Cancer Connect)
  • Information sessions
  • Clinical Trials listing
  • NET Library – publication / articles / videos

Patient resources:

  • Fact Sheets
  • Nation NET service listing
  • Information Booklets
  • PLANET App – PROMs
  • Treatment & Wellness Care Plan
  • Webinars/forums
  • Monthly newsletter
  • Living with NETs online education program

HCP services:

  • Professional accredited Learning
  • PLANET Registry
  • Clinical In-services
  • Patient referrals
  • Information booklets
  • Monthly newsletter

Information lines / help lines

  • Call 1300 287 363 Monday to Friday 9am to 5pm AEST

Programs, apps and tools

  • PLANET Registry App A free app is available when you are recruited into the Registry which enables recording of Quality-of-Life scores, performance status, Bristol Stool Scale and vitals (Height, weight and BMI)

Recommended links

Last reviewed: June 2025

Information from this partner

Found 13 results

Current Open Clinical Trials - NeuroEndocrine Cancer Australia

The purpose of this study is to compare the effectiveness and safety of CAM2029 to octreotide LAR or lanreotide ATG in patients with advanced, well-differentiated GEP-NET.

Read more on NeuroEndocrine Cancer Australia website

Fact Sheets - NeuroEndocrine Cancer Australia

Fact Sheets NeuroEndocrine Cancer Australia has prepared the following Fact Sheets related to NET cancer treatments. We will be adding to this list progressively over the coming months. If you are unsure of any information, please contact ourNET Nurse on 1300 CURE NETS or speak with your healthcare professional. Should you require fact sheets in […]

Read more on NeuroEndocrine Cancer Australia website

I Am A Patient - NeuroEndocrine Cancer Australia

Being diagnosed with cancer can be a very scary and confronting experience. Being diagnosed with neuroendocrine (sometimes called NETs or Carcinoid) cancer, can be even more confusing and daunting due to the lack of information and resources readily available. Therefore one of the main aims of NeuroEndocrine Cancer Australia is to provide easy to understand […]

Read more on NeuroEndocrine Cancer Australia website

I Am A HCP - NeuroEndocrine Cancer Australia

Welcome to our Health Professionals page which contains the latest in NET Cancer information and resources. To join our Health Professionals Network and receive bi-monthly newsletters and direct invitations to our informative webinars and events, please complete our newsletter sign up. To request a copy of our printed booklet “Neuroendocrine Tumours: A Guide for Healthcare […]

Read more on NeuroEndocrine Cancer Australia website

Request an In-Service - NeuroEndocrine Cancer Australia

NeuroEndocrine Cancer Australia understands there are many patients managed in centres in regional and rural settings and access to education for Health Care Professionals can be challenging (time and distance). There are also settings across Australia who don’t see many NET patients despite the location. So, we want to increase your knowledge on NETs and […]

Read more on NeuroEndocrine Cancer Australia website

NET Nurse - NeuroEndocrine Cancer Australia

NeuroEndocrine Cancer Australia offer a free, confidential telephone information & support service via our NET Nurse email and telephone line.

Read more on NeuroEndocrine Cancer Australia website

Australian NET Specialists - NeuroEndocrine Cancer Australia

NeuroEndocrine Cancer Australia NET Specialist Registry is a resource that acknowledges those medical practitioners who are experienced in the management of neuroendocrine cancers and who fulfill certain criteria that NeuroEndocrine Cancer Australia has applied.

Read more on NeuroEndocrine Cancer Australia website

Patient resources - NeuroEndocrine Cancer Australia

Fact Sheets NeuroEndocrine Cancer Australia has prepared a number of fact sheets related to NET cancer treatments. Find Out More Information Booklets Our booklets contain information to help you understand your NETs diagnosis and treatment options. Find Out More Other Resources Find other resources that you may find useful including wallet cards and food diaries. […]

Read more on NeuroEndocrine Cancer Australia website

Patient Stories Archive - NeuroEndocrine Cancer Australia

Read more on NeuroEndocrine Cancer Australia website

Patient Videos - NeuroEndocrine Cancer Australia

We will be bring you a series of webinars and videos to educate, inform and provoke discussion around NET cancers. Webinars will be uploaded here so if you miss them live you can watch at your leisure. We hope you find them useful. Also please visit our youtube channel for a wealth of videos and informative video […]

Read more on NeuroEndocrine Cancer Australia website

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