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Motor Neurone Disease Australia

Motor Neurone Disease Australia (MND Australia) is the national voice for people living with motor neurone disease (MND).

MND Australia and its members, the state MND associations, form the only national network focused on improving the lives of all Australians living with MND.

Vision and Mission

MND Australia works to advocate, inform, connect and invest in research to improve the lives of all those impacted by MND and realise our vision of a world free of MND.

How MND Australia can help

MND Australia can help improve the lives of people living with MND by:

  • drawing on the latest, high quality scientific research on the causes, management and care of the disease to improve and support the provision of evidence based care
  • developing innovative campaigns that bring insights from local experience to a national level to inform and influence decision makers
  • creating high quality, easy-to-read guides, fact sheets and other information resources about dealing with MND to empower and inform all those living with MND
  • coordinating more effective responses to optimise access to needs based government funded supports for all people living with MND, regardless of age or location
  • through our research arm MND Research Australia invest research donations in the highest calibre research and innovation to move us closer to effective treatments and to maximize quality of life.

Information lines / help lines

  • Call 1800 777 175 to contact your state MND association, Mon to Fri, 9am to 5pm

  • Call 02 8287 4980 to contact MND Australia, Mon to Fri, 9am to 5pm AEST

Programs, apps and tools

  • MNDcare an evidence based and best practice website for health, disability, aged and community care professionals.
  • Could this be MND? a tool designed to assist GPs in recognising MND symptoms for helping improve the referral time to a neurologist.

Recommended links

Last reviewed: April 2020

Information from this partner

Found 15 results

MND Australia - COVID-19 and MND

People with MND are a vulnerable population who could be more susceptible to contracting COVID-19 (coronavirus) and developing serious complications.

Read more on Motor Neurone Disease Australia website

MND Australia - Familial MND and genetic testing

About 10% of MND is ‘familial’, which means more than one affected person in a family has been affected by MND. People with familial MND have the disorder because of a mutation in a inherited gene.

Read more on Motor Neurone Disease Australia website

MND Australia - Riluzole

Riluzole is a medication that prolongs survival in people with MND on average by two to three months. It does not cure MND.

Read more on Motor Neurone Disease Australia website

MND Australia - What is MND?

Motor neurone disease (MND) affects the nerves (motor neurones) that communicate between the brain and the muscles that enable us to move, speak, breathe and swallow.

Read more on Motor Neurone Disease Australia website

MND Australia - MND statistics in Australia

Statistics about cases of MND in Australia and support from state MND associations

Read more on Motor Neurone Disease Australia website

MND Australia - Just diagnosed with MND

Summary of where to find information and support.

Read more on Motor Neurone Disease Australia website

MND Australia - Living better with MND

An overview of common symptoms and tips to help people with MND live better.

Read more on Motor Neurone Disease Australia website

MND Australia - NDIS vs My Aged Care

Government support for people living with motor neurone disease (MND) varies depending on an individual’s personal circumstances. For expert advice on the National Disability Insurance Scheme (NDIS) and My Aged Care for people living with MND, contact your state MND association.

Read more on Motor Neurone Disease Australia website

MND Australia - For family and friends of people with MND

If a family member or friend has been recently diagnosed with motor neurone disease (MND) you may be wondering where to turn for information and support

Read more on Motor Neurone Disease Australia website

MND Australia - Diagnosis and tests for MND

An overview of common tests used to diagnose MND

Read more on Motor Neurone Disease Australia website

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