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MND Australia

Motor Neurone Disease Australia (MND Australia) is the national voice for people living with motor neurone disease (MND).

MND Australia and its members, the state MND associations, form the only national network focused on improving the lives of all Australians living with MND.

Vision and Mission

MND Australia works to advocate, inform, connect and invest in research to improve the lives of all those impacted by MND and realise our vision of a world free of MND.

How MND Australia can help

MND Australia can help improve the lives of people living with MND by:

  • drawing on the latest, high quality scientific research on the causes, management and care of the disease to improve and support the provision of evidence based care
  • developing innovative campaigns that bring insights from local experience to a national level to inform and influence decision makers
  • creating high quality, easy-to-read guides, fact sheets and other information resources about dealing with MND to empower and inform all those living with MND
  • coordinating more effective responses to optimise access to needs based government funded supports for all people living with MND, regardless of age or location
  • through our research arm MND Research Australia invest research donations in the highest calibre research and innovation to move us closer to effective treatments and to maximize quality of life.

Information lines / help lines

  • Call 1800 777 175 to contact your state MND association, Mon to Fri, 9am to 5pm

  • Call 02 8287 4980 to contact MND Australia, Mon to Fri, 9am to 5pm AEST

Programs, apps and tools

  • MND Connect Information and resources for health professionals, disability and aged care providers

Recommended links

Last reviewed: August 2021

Information from this partner

Found 55 results

Psychosocial support in MND | MND Australia

Changes to life plans, work, travel and friendships following a diagnosis of MND are an inevitable consequence of progressive loss of function, problems with speech and swallowing and/or cognitive change

Read more on MND Australia website

For health professionals & service providers | MND Australia

Information and resources for health professionals and disability and aged care providers who support and care for people living with motor neurone disease

Read more on MND Australia website

Saliva management | MND Australia

Sialorrhoea or drooling does not occur due to excess saliva production but rather a decreased ability to manage normal saliva production due to weakness of the tongue, lip and swallowing muscles

Read more on MND Australia website

Breathing & MND: what you can do | MND Australia

Motor neurone disease (MND) causes the muscles you have control over to weaken

Read more on MND Australia website

Types of help at home | MND Australia

With a little bit of help, living with MND at home can be made easier, more comfortable and support greater independence

Read more on MND Australia website

Muscle weakness & pain | MND Australia

People living with MND and health providers commonly question the effect of exercise on MND

Read more on MND Australia website

MND care approach | MND Australia

There is no known cause for MND (except in a very small number of genetic cases), no effective treatments and no cure - yet

Read more on MND Australia website

Managing symptoms | MND Australia

A coordinated multidisciplinary approach to MND symptom management, from diagnosis through to bereavement, is vital for both quality and length of life

Read more on MND Australia website

Riluzole | MND Australia

Riluzole is manufactured under the names Rilutek™ and APO-Riluzole

Read more on MND Australia website

Living with MND | MND Australia

Understanding the symptoms of MND, together with the use of assistive technology and care providers,can help you live as well as possible for as long as possible

Read more on MND Australia website

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