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HeartKids

HeartKids is the only Australian not-for-profit organisation dedicated to supporting and advocating for families impacted by childhood-onset heart disease (CoHD).

They bring care and connection to those living with CoHD. As your CoHD companion for life, HeartKids makes holistic care possible with access to tailored information, resources, and support.

Vision and mission

HeartKids seeks to give every child, teenager, and adult in Australia with congenital or childhood-onset heart disease a fighting chance to live a long, healthy, and fulfilling life.

How HeartKids can help

HeartKids offer:

  • Direct support and guidance from HeartKids Support Coordinators across Australia to assist in navigating journeys with childhood-onset heart disease (CoHD)
  • Education and information resources, including our Resource Library with factsheets, podcasts, and videos relating to CoHD
  • Mental health support for people and their families impacted by CoHD
  • HeartKids Helpline services by phone, webchat and email, five days a week
  • In-hospital and community events, morning teas, and social connection opportunities for those on a journey with CoHD.

Information/help lines

  • Call 1800 HEARTK (1800 432 897) Monday to Friday, 9am to 5pm, AEDT/AEST
  • Use Webchat service on HeartKids' website, Monday to Friday, 9am to 5pm, AEDT/AEST

Programs, apps and tools

  • UpBeat Teen App An app designed with help from young people with heart conditions. It’s your go-to for tracking your health, appointments, and important contacts. Plus, find resources for transitioning to adult healthcare and connecting with teen events and support groups—all in one convenient app.

Recommended links

Last reviewed: May 2024

Information from this partner

Found 55 results

Childhood Heart Disease- the facts

Information and key facts about childhood heart disease.

Read more on HeartKids website

Sexual health for people with childhood onset heart disease – Easy Read

Sexual Health: Addressing important aspects of intimate wellbeing.

Read more on HeartKids website

Mental health and your heart – Easy Read

Mental health challenges for young people with childhood onset heart disease

Read more on HeartKids website

Growing up with a heart condition – Easy Read

Information on managing CoHD for young people.

Read more on HeartKids website

Navigating a new diagnosis

A guide for recently diagnosed adults and young people.

Read more on HeartKids website

CHD Real Talk - Bereavement - HeartKids

In this special CHD Real Talk episode, we dive into a topic that touches the hearts of many within the Congenital Heart Disease (CHD) community: Bereavement

Read more on HeartKids website

CoHD Explained: Contraception, Parenthood, and Pregnancy - HeartKids

Associate Professor Dominica Zetner provides expert insights into contraception, parenthood, & pregnancy for those impacted by CHD.

Read more on HeartKids website

CHD Real Talk - Body Image and Scars - HeartKids

Join HeartKids community members in this powerful Real Talk video as they bravely open up about body image and scars

Read more on HeartKids website

Sexual health and Pregnancy - HeartKids

Information about sexual health and pregnancy for people with congenital heart disease (CHD)

Read more on HeartKids website

Body image and CHD - HeartKids

Information on body image for people with congenital or childhood heart conditions

Read more on HeartKids website

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