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HeartKids

HeartKids is the only Australian not-for-profit organisation dedicated to supporting and advocating for families impacted by childhood-onset heart disease (CoHD).

They bring care and connection to those living with CoHD. As your CoHD companion for life, HeartKids makes holistic care possible with access to tailored information, resources, and support.

Vision and mission

HeartKids seeks to give every child, teenager, and adult in Australia with congenital or childhood-onset heart disease a fighting chance to live a long, healthy, and fulfilling life.

How HeartKids can help

HeartKids offer:

  • Direct support and guidance from HeartKids Support Coordinators across Australia to assist in navigating journeys with childhood-onset heart disease (CoHD)
  • Education and information resources, including our Resource Library with factsheets, podcasts, and videos relating to CoHD
  • Mental health support for people and their families impacted by CoHD
  • HeartKids Helpline services by phone, webchat and email, five days a week
  • In-hospital and community events, morning teas, and social connection opportunities for those on a journey with CoHD.

Information/help lines

  • Call 1800 HEARTK (1800 432 785) Monday to Friday, 9am to 5pm, AEDT/AEST
  • Use Webchat service on HeartKids' website, Monday to Friday, 9am to 5pm, AEDT/AEST

Programs, apps and tools

  • UpBeat Teen App An app designed with help from young people with heart conditions. It’s your go-to for tracking your health, appointments, and important contacts. Plus, find resources for transitioning to adult healthcare and connecting with teen events and support groups—all in one convenient app.

Recommended links

Last reviewed: April 2025

Information from this partner

Found 21 results

Childhood Heart Disease: The Facts - HeartKids

Information and key facts about childhood heart disease.

Read more on HeartKids website

CHD and Neurodevelopment - HeartKids

Information for families on how congenital heart disease (CHD) can impact development in children.

Read more on HeartKids website

Starting School: A guide for parents - HeartKids

Information to help parents of children with heart conditions prepare for starting school.

Read more on HeartKids website

Easy Read: Mental health and your heart - HeartKids

Mental health challenges for young people with childhood onset heart disease

Read more on HeartKids website

Easy Read: Growing up with a heart condition - HeartKids

Information on managing CoHD for young people.

Read more on HeartKids website

Body image and CHD - HeartKids

Information on body image for people with congenital or childhood heart conditions.

Read more on HeartKids website

Congenital heart disease: Causes - HeartKids

Information about the causes of congenital heart disease.

Read more on HeartKids website

CoHD Explained: What is Congenital Heart Disease (CHD)? - HeartKids

Join Dr. Lucas Eastaugh, paediatric cardiologist, as he presents a clear and concise overview of Congenital Heart Disease (CHD). In this video, Dr. Eastaugh sheds light on the basics of CHD, common forms, and examples, providing valuable insights for both patients and caregivers alike. Discover the causes behind CHD and gain a deeper understanding of this condition.

Read more on HeartKids website

The dangers of vaping with a heart condition - HeartKids

The dangers of vaping with a heart condition. What young people need to know.

Read more on HeartKids website

Easy Read: CHD Info for Young Adults

Adulthood and Your Heart Condition: Information on managing CoHD into adulthood.

Read more on HeartKids website

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