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Syndromes Without A Name (SWAN) Australia
Closed • Opens 9am tomorrow
Syndromes Without A Name (SWAN) Australia
Opening times
- Monday9am–5pm
- Tuesday9am–5pm
- Wednesday9am–5pm
- Thursday9am–5pm
- Friday9am–5pm
Contact
Phone 0404 280 441
Email info@swanaus.com.au
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About this service
Billing
No fee
A free service where no payment or Medicare card is required.
Additional information
SWAN Australia aims to increase awareness and understanding of the impact and prevalence of undiagnosed genetic conditions within the wider community. We provide information and emotional support to families to assist them with establishing enduring mutually supportive relationships. We want to limit the isolation and the negative social, emotional and financial impacts experienced by families.
We advocate for further funding into genetic research, so that more testing is available, turnaround time on testing is decreased and more accurate results are achieved. We strive to obtain better resources and pathways for our children without a diagnosis in the future.
Our aim is to offer support and information to parents, carers and friends of people whose child/children have an undiagnosed genetic disorder/syndrome. This group was established to fill a void in the system. It is our aim to to assist parents/carers on their unknown genetic journey and advocate on their behalf.
We advocate for further funding into genetic research, so that more testing is available, turnaround time on testing is decreased and more accurate results are achieved. We strive to obtain better resources and pathways for our children without a diagnosis in the future.
Our aim is to offer support and information to parents, carers and friends of people whose child/children have an undiagnosed genetic disorder/syndrome. This group was established to fill a void in the system. It is our aim to to assist parents/carers on their unknown genetic journey and advocate on their behalf.
* Details may vary. Please call the service before visiting to double check details.
* Details may vary. Please call the service before visiting to double check details.