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RHDAustralia

RHDAustralia supports the control of rheumatic heart disease (RHD) in Australia. Funded under the Australian Government’s Rheumatic Fever Strategy, RHDAustralia is based at Menzies School of Health Research in Darwin.

Vision

No child in Australia dies as a result of acute rheumatic fever (ARF) and its complications.

What we do

  1. Australian Guideline for the prevention, diagnosis and management of acute rheumatic fever and rheumatic heart disease

    RHDAustralia updates evidence based guidelines to support Australia’s health workforce to achieve best practice care for people with ARF and RHD. Revisions are undertaken in collaboration with key stakeholders and peak Indigenous health bodies.

  2. Education and training resources for health professionals, people with ARF/ RHD, their families and communities.

    RHDAustralia works closely with stakeholders, patients, families and communities to develop culturally-appropriate information to help increase disease prevention and support self-management. These activities are carried out in conjunction with key partner organisations and state and territory-based RHD control programs across Australia.

  3. Support health systems to achieve evidence-based best practice for focused prevention activities in high-risk communities.

    RHDAustralia assists with development and implementation of culturally-appropriate resources for people living with ARF and RHD and their communities, with a focus on peer support initiatives, self-management tools and community health promotional material.

Recommended links

Last reviewed: January 2019

Information from this partner

Found 24 results

Margaret and DJ, Fitzroy Crossing | RHDAustralia

Local staff initiative helps to improve acute rheumatic fever prevention in Fitzroy Crossing, Western Australia.

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A family's journey with acute rheumatic fever and rheumatic heart disease | Cherie, Kenya and Luke McAdam | Rheumatic Heart Disease Australia

The McAdam family live every day with acute rheumatic fever and rheumatic heart disease. Cherie McAdam's daughter Kenya had recurrent acute rheumatic fever which was underdiagnosed. Kenya now has rheumatic heart disease. Cherie's son Luke is on secondary prophylaxis for acute rheumatic fever. By sharing their story, the family hope to raise awareness to improve care for other

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Eddie Masina with a Stayin' Strong health message | Rheumatic Heart Disease Australia

This Stayin' Strong message was a snippet of a larger interview Eddie Masina did with 98.9FM

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Individuals & Families | Rheumatic Heart Disease Australia

I want everybody to know my family’s story, so we can stop our kids getting sick hearts, and stop rheumatic heart disease in our people.

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Burden of ARF and RHD | Rheumatic Heart Disease Australia

The burden of acute rheumatic fever (ARF) and rheumatic heart disease (RHD) in Australia.

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New technology helping doctors make the right diagnosis | Rheumatic Heart Disease Australia

Since 2013, the acute rheumatic fever diagnosis and guideline app has been downloaded over 8,000 times. It can be used in a variety of clinical scenarios, and gives clinicians clear guidance in diagnosing acute rheumatic fever (ARF).

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About Acute Rheumatic Fever and Rheumatic Heart Disease

Rheumatic heart disease (RHD) is damage to one or more heart valves that remains after an episode of acute rheumatic fever (ARF) is resolved

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RHD Wiping out generations of Indigenous Australians | Rheumatic Heart Disease Australia

NITV short documentary featuring people with RHD, including Leon from Bagot, Aldrick in Maningrida, among others

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RHD in pregnancy | Rheumatic Heart Disease Australia

Video features Bo Remenyi and Jessie Johnston on Tiwi Islands, discussing the importance of cardiac care during pregnancy

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Secondary Prophylaxis | Rheumatic Heart Disease Australia

Short video about secondary prophylaxis, what it is, and why it is important

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