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Genetic and Rare Disease Network

The Genetic and Rare Disease Network (GaRDN) is a not for profit organisation that acts as a peak body for genetic and rare disease support groups in Western Australia, working to empower individuals and their families to reach positive health outcomes. They inform health professionals and the wider community on the perspectives and experiences of those affected by genetic and rare diseases. GaRDN connect key stakeholders and service providers with people affected by genetic and rare diseases.

GaRDN works to ensure that people with genetic and rare diseases have timely access to relevant, up-to-date information about their condition and the healthcare and other services available to them in WA.

GaRDN represents the collective voices of people with genetic and rare diseases, their families and carers, to ensure that they are included in health policy and strategic decision making. They aim to make health professionals more aware of genetic and rare diseases.

GaRDN works to develop integrated, coordinated health care and support by stakeholders involved in the support and health care of people with genetic and rare diseases, their families and carers.

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Last reviewed: March 2019

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